We all know that none of us share everything online right? I always remind people that we all love to share our highlight reels with the masses but when it comes down to the muckity pluck – we may try to hold some of that back! Well I am no exception to that rule. There are swathes of my life that are only for me and mine – however I am facing a new situation that is a direct result of my weight loss surgery so I feel like it is something that I should share because it is going to have a massive impact upon how I do everything in the weeks, months and years ahead.
There are times when I have struggled to be open about what is going on in my post weight loss surgery body. I share because I hope that it can possibly help others in some small way. For the most part, things for me have been quite difficult and I think it would be completely fair to say that I have not had an easy time of it. Yes I have lost a LOT of weight. I needed to lose a lot of weight. In saying that I love, celebrate and embrace all shapes – but my body was becoming increasingly immobile and shut down prior to my surgery, that is why I needed to act. I don’t regret my surgery at all. But I am feeling a little overwhelmed today.
Lets take a quick trip down memory lane. May 2018 I had an infected cyst removed from my upper gum that resulted in massive facial swelling and a long recovery. June 2018 I had RNY – Gastric Bypass. July 2018 I had my Gallbladder removed and a longer than expected hospital stay while they tried to work out what was going on with my body (scary visits from the infectious disease specialist) December 2018 Hernia repair surgery. February 2019 my husband had his first flair up around his autoimmune disease. March – June 2019 MASSIVE weight loss (around 10 kilos a month) and malnutrition issues with scope and iron infusion. July 2019 Steve’s official diagnosis. September 2019 First skin removal surgery with complications, ICU stay, return to theatre prevent me from bleeding to death, repeat blood transfusions, ongoing blood protein issues, ongoing iron issues. March 2020 heart scare and hospital Stay. May 2020 Steve had surgery. February – September 2020 strange symptoms that were attributed to stress etc. When I read that and I know that it doesn’t show even an 1/8th of what has gone on in our lives, I know that it has been a really big few years.
It has not been all doom and gloom and actually life really is kind of wonderful in so many terrific ways. I remain steadfastly grateful for the wonderful people that continue to love and care for me and for mine. So, in the paragraph above I said that I have had weird symptoms for more than half a year. If I am honest, and really think about it, it was probably even earlier than this – perhaps late last year but I didn’t want to think about or acknowledge that anything else could possibly be going on in my body. I attributed everything to stress and at the advice of my doctors, I remove additional anxiety, I changed my field of work, I stopped giving my attention to situations that were not good for me and I simplified my life. From that perspective the pandemic was wonderful because it gave me a chance to reimagine and re-think my life but the symptoms persisted. The change in work meant that my weight loss became stable and that was truly a wonderful thing – but the other things persisted.
Last week I passed out for the 3rd time in as many days.This was becoming something of a regular event. A terrifying one and not one that I want to regularly put my children or husband through but it was turning into a somewhat regular thing. So it was time for another doctors visit and more blood tests were ordered, then another doctors visit and more blood tests were ordered and after those yet another lot of emergency bloods came back and I ended up with a referral back to my weight loss surgeon. I was referred back to my specialist because my GP suspected I had a condition that can result from gastrointestinal surgery. It’s rare (yeah so surprised by that 😒) But he felt it required the input of my gastrointestinal surgeon. I called the rooms and made and appointment for the 16th of October – his soonest available. But honestly that felt like a LONG TIME to wait when I keep collapsing. I live in the State of Australia with the most cases of Covid, and if I presented at Emergency I wouldn’t see my family again until I was released …….. so I decided to contact my surgeon directly via email. I told him exactly what has happened and as usual he acted swiftly and I had my appointment yesterday. I have often said he is amazing and he TRULY is. I start medication today. I see an endocrinologist really soon as I learn how to live with reactive hypoglycaemia. Doing my blood sugars regularly, making sure I am eating enough and trying to avoid hypos. Last night, 2 hours after dinner my blood sugar level was dangerously low.
This morning, I will be honest, I feel frightened to eat because I don’t want my BSL to drop and that is what reactive hypoglycaemia does. My body is producing too much insulin and it does that in spite of what I eat. It’s not a common condition and I will learn how to manage it – it will just take me a few days to wrap my head around it all. At least it has a name and thankfully the blood tests caught it! I am so thankful that my GP believed me enough to keep looking because he knew that something was wrong. I am thankful for the urgent blood tests and for the incredible care he always gives. I am also so thankful to my surgeon. He has seriously been incredible every single time I have contacted him. The medication he has prescribed for me had to be ordered in and will arrive today so I will be able to start that tonight. So that is what has been going on with me health wise. It’s a new situation and has been really scary for me and for my family to navigate. Times like these show me who and what is important.
People that love you – truly love you – They are important. It’s easy to love someone when everything is great but who is really there for you? I know who is really there for me! Our health and well being – well that is critically important. We only get so many chances with these things and once they are lost they are sometimes lost forever so I really want to explore you to take care of those you love and take care of you.
My summer clothes have started arriving! We hope to spend Christmas in Queensland with our immediate family – providing Covid restrictions have eased sufficiently by that time.